Life with MS, seeking a cure

Saturday, September 30, 2006

Hello. and welcome to my blog. I never thought I'd have one but it seems with all that I've been through maybe this will be a great outlet to the frustration I feel day to day. Are you with me?

My name is Karyl Faller and I live in Littleton, Colorado. I am 49 and was dx 11 years ago. I have been married for 26 years to Chuck, and have two children, Jennifer 23 and Charlie 21.

I have tried Betaseron for 4 years and it did nothing to slow down MS. I tried Novantrone but only had 3 or 4 infusions before my neuro took me off it. Then I tried Copaxone and never felt like it did anything. I took it for 5 years. Depending on which neuro I see will be what I am, ie R/R, SP,PP etc. I started IVIG treatments a year and a half ago and had an MRI last March and I am stable for the first time in 11 years. I stopped taking Copaxone last December in preparation for Tysabri. I want to give this drug a chance. I will try anything that has one ioda of possibility to help me.

Basically, I am crippled. I use a walker to pivot from my bed to my recliner and for short walks of 50 ft or less. I use a Jazzy around the house and a scooter outside the house. I am home bound most days (not fun) except when I go to the doctors or for infusions. This is not living with MS but rather life with MS. Life is what you make it and I am determined to be cured. I will not rest, I will not fear, I will not tire, til I'm cured.

In my coming posts I'll keep you informed of my quest for a cure.
Karyl

2 Comments:

At 8:37 PM, Anonymous Anonymous said...

Karyl...following me down the golden Tysabri road I see?(smiling), good MS blog Karyl, keep posting! Lauren

 
At 12:20 AM, Anonymous Anonymous said...

Hi Karyl, I haven't "seen" you for a long time! I just had my second infusion of Tysabri yesterday. No big changes to report, but I didn't feel as fatigued today as I normally do. I'm still working full time as a driver rehab specialist supervisor. I was in Colorado at Estes Park last year this time...remember Pat? Psei#####
We met her there! Hope to read more of your blog entries. ~Midge

 

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