Life with MS, seeking a cure

Sunday, February 18, 2007

Did ya miss me? Be nice....... I've been doing OK, nothing great trust me. I tried the new meds and nothing new happened. I've been reading about Fampridine SR and it sounds like a good drug. Helps with arm and leg strength and it should work for P/P which will be a first. It's a pill too, horray!!!!! So little, if any, research is done for P/P.
I won't quit til they fix me so they can bring it on.
Karyl

22 Comments:

At 12:00 PM, Anonymous Anonymous said...

So sorry to hear that your dx means no chance of Tysabri for you.

Please visit cpnhelp.org and the Antibiotice sub-topic forum over on thisisms.com.

There are various bacterial causation theories for MS. Regardless of which one may be right, long term antibiotic treatment seems to be helping some stop progression and others to even see improvement, including those with PPMS.

It's not an easy or quick fix. There is not double blinded clincal trials. It is not mainstream. And there is always the placebo affect to make you skeptical. But there is no profit agenda. Just people helping each other trying a combo antibiotic regimen.

Wish you the best!

 
At 3:25 PM, Anonymous Anonymous said...

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At 11:49 AM, Blogger mdmhvonpa said...

Now, did you miss ME!? :D

 
At 2:05 PM, Blogger Karyl said...

HELP I can't seem to post on my blog sobbbbb

 
At 3:29 PM, Anonymous Anonymous said...

i miss this

 
At 2:44 PM, Blogger LISA EMRICH said...

Hi,

I have an MS Blogger Project underway over at my place. Please visit MS Awareness, Blogging Friends, and a little Link Love to join in.

Thanks,
Lisa

 
At 7:29 PM, Blogger LISA EMRICH said...

Hi, I apologize for the 'form' letter but it is the easiest way to pass word most quickly.

I am thrilled with the response to the MS Blogger project started at my blog, Brass and Ivory. I appreciate all those who took time to post about it on their blogs. I have discovered even more bloggers who have MS, whether they blog about the MS or not. A new listing is available at MS Blogger Community Project Revised.

Secondly, I'm looking for submissions for next week's Carnival of MS Bloggers. Information can be found at the end of each issue archived at Carnival of MS Bloggers. What I'm looking for this week are posts related to creativity. I discovered so many new bloggers who quilt, or knit, or crochet, or write, or photograph, etc. Basically, what do you do to express yourself?

Thank you so much for participating.

Lisa Emrich

P.S. I also apologize for any increased 'spamming' of blog comments due to my growing linklist of bloggers with MS. For that I am sincerely sorry.

 
At 7:00 AM, Blogger barb michelen said...

Hello I just entered before I have to leave to the airport, it's been very nice to meet you, if you want here is the site I told you about where I type some stuff and make good money (I work from home): here it is

 
At 5:24 PM, Blogger Jaime said...

Glad to hear you are doing well. Keep us updated on how the new meds work. Take care.

 
At 3:29 PM, Blogger bernard n. shull said...

i did a little research after you told me about your "thing", and if you want a way to make more money using your your blog you can enter this site: link. bye.

 
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At 12:33 PM, Anonymous Anonymous said...

Your blog keeps getting better and better! Your older articles are not as good as newer ones you have a lot more creativity and originality now keep it up!

 
At 6:06 AM, Anonymous Anonymous said...

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At 1:54 AM, Anonymous Anonymous said...

Hi there!
I would like to burn a theme at here. There is such a thing, called HYIP, or High Yield Investment Program. It reminds of ponzy-like structure, but in rare cases one may happen to meet a company that really pays up to 2% daily not on invested money, but from real profits.

For several years , I earn money with the help of these programs.
I don't have problems with money now, but there are heights that must be conquered . I make 2G daily, and my first investment was 500 dollars only.
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At 2:03 PM, Anonymous Anonymous said...

My friend and I were recently discussing about the ubiquitousness of technology in our daily lives. Reading this post makes me think back to that discussion we had, and just how inseparable from electronics we have all become.


I don't mean this in a bad way, of course! Societal concerns aside... I just hope that as the price of memory drops, the possibility of uploading our brains onto a digital medium becomes a true reality. It's a fantasy that I dream about almost every day.


(Posted on Nintendo DS running [url=http://knol.google.com/k/anonymous/-/9v7ff0hnkzef/1]R4i SDHC[/url] DS QDos)

 
At 9:45 PM, Anonymous Anonymous said...

Today is my lucky day :)
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At 2:20 AM, Anonymous Anonymous said...

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I have been looking to figure out a good place to begin with the Acai free trial an was just wanting to know if anybody had any opinions on whether or not the stuff works to lose weight? So far here's the only [url=http://acaiberries.weblog.com/acai-berry-free-samples-what-you-get-know-more/]article[/url] I have been able to read online that seemed real for what my goals are. Opinions?

 
At 2:04 PM, Anonymous グリー said...

今年のクリスマスも後少しですね。グリー内でもクリスマスに備えて異性と交流を持つコミュニティが活発で、自分も今年のクリスマスにお陰で間に合いました!!みなさんもイブを一人で過ごさなくても良いように、グリーで異性をGETしよう

 
At 4:50 AM, Anonymous 阪神ジュベナイルフィリーズ said...

阪神ジュベナイルフィリーズ 2010を徹底予想!!過去の結果やデータから分かる高配当の法則…出走馬の状態などを現地のスタッフからお届けします!

 
At 7:25 PM, Anonymous 出合い said...

待望の新・都市伝説サイト誕生!!高確率の出会い率を誇るサイトに侵入した調査員が実際に体験した刺激的な体験とは…?信じるか信じないかはあなた次第!

 
At 1:43 PM, Anonymous M男 said...

女性に侮辱されたり罵られて興奮してしまうM男は集まれ!アナタのM度を測れるサイトが誕生!M男チェッカーで自分に合うプレーを探しましょう!あなたはどんなプレイがお好みですか?

 

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