Life with MS, seeking a cure

Saturday, February 03, 2007

It's always darkest before the light......... I found the light, his name is David. When God shuts a door, He opens a window, He did, and there was David. I would have no hope if not for him.

I have gotten used to the fact there is nothing out there YET that can help, and tried not to dwell much on my last appointment. However, all the new info did keep replaying in my normal brain. Gotta brag about something's that's normal.

On Friday I called David to tell him about my appointment. He told me his friend, Dr Murray, who was the director of the Rocky Mountain MS center now in private practice, has put 5 patients on Tysabri. Two were allergic, one her insurance wouldn't approve, and two are status quo. He said Tysabri is not the strong/great drug he thought it might be and its a big disappointment. I felt better all ready. I had my heart set on that drug because of what David told me, its a good drug, so I guess things change.

He didn't seem as surprised with my P/P title, he is not a neurologist so not caught up in the categories. It's my neuro that should have told me. David is developing a drug, my drug, to treat symptoms, and those haven't changed. This will be the first drug for P/P patients and I hope he makes millions. He was very upset with the way I was treated at the hospital. It wasn't their fault, I couldn't find a nurse to help me and didn't feel like waiting around, just wanted out, hence I got cold feet, puts a whole new meaning to that phrase.

David told me not to even think about Dr. Corboy any more and he changed the subject to football, and the super bowl. That took us happily down a whole nother road.

I'm back on track and need to keep focused that I have David working on that miracle I need. I'm sure he'll come through. Thanks for your support, it means a lot to me.
Hugs,

Karyl

1 Comments:

At 9:38 AM, Blogger mdmhvonpa said...

I'm so sorry things are not going smoothly, God bless David though.

 

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